Konu "Krabbe" için PubMed İndeksli Yayınlar Koleksiyonu listeleme
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Limitations in the approach health caregivers can take in end-of-life care decisions
(Wiley, 2015)Background In the terminal stages of neuro-metabolic diseases, parents can begin to experience a sense of loss even before the child dies, and might accept death prematurely. Cases A 2.5-year-old female patient with Sandoff ...