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    Assessment of parents' knowledge regarding phenylketonuria and its affecting factors: a cross-sectional study
    (African Field Epidemiology Network-Afenet, 2022) Ozturk, Fatma Unesi; Bulbul, Selda Fatma; Alpcan, Aysegul
    Introduction: the management of phenylketonuria (PKU) is complex. Practical skills and knowledge of individuals taking care of PKU patients are important for treatment compliance. This study investigated parents' knowledge about PKU and its affecting factors. The study group consisted of 62 parents of PKU patients. Methods: data were collected using a ready-made questionnaire on sociodemographic characteristics, PKU and dietary treatment. Total knowledge score (KS) was calculated by giving 5 points for each correct answer. Results: the study included 34 mothers and 28 fathers; 90.3% of patients were diagnosed during the newborn screening program, 6.5% between ages 1 and 2, and 3.2% at age 6 or after. Among all, 38.7% presented to their follow-up appointments with their mothers, 61.3% with both their parents and none with their father alone. Mothers answered all questions more accurately than fathers. Mothers' and fathers' mean KSs were 73.97 +/- 12.72 and 53.04 +/- 22.25, respectively. The highest KS was obtained among parents whose children were 13 years of age or older. Conclusion: the presence of another family member, parents' education level, working status and professional qualifications, previous training on PKU and family's economic status were the affecting factors. Creating a PKU dietary plan requires knowledge and diligence. Patients and their parents should be periodically informed about the disease and dietary treatment in order to increase their level of knowledge.
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    Öğe
    Mühimmat Fabrikası Bomba Dolum Atelyesi’nde Patlama Travmasına Maruz Kalan İşçilerde Minnesota Çok Yönlü Kişilik Envanteri
    (Kırıkkale Üniversitesi, 2008) Oğuztürk, Ömer; Bayar Muluk, Nuray; Oral, Nursen; Yalçınkaya, Fulya; Bulbul, Selda Fatma
    Mühimmat Fabrikası işçilerinde, Minnesota Çok Yönlü Kişilik Envanteri (Minnesota Multiphasic Personality Inventory-MMPI) kullanılarak, patlama travması ve kişilik özellikleri arasındaki ilişki araştırılmıştır. Metod: Patlama travmasına maruz kalan 44 erkek işçi, çalışma grubunu (Grup 1) oluşturmuştur. Patlama travmasına maruz kalmayan 44 işçi (Grup 2), kontrol grubunu oluşturmuştur. Tüm hastalara MMPI uygulanmıştır. Bulgular: MMPI alt-skalaları, Grup 1 ve 2’de farklı değildi. Çalışma grubunda, MMPI alt-skalaları yaşlı işçilerde, patlama sahasına yakın olanlarda, patlamadan sonra akut tinnitusu, işitme kaybı ve uyku bozukluğu olanlarda artmıştır. Eğitim seviyesi daha yüksek olan işçiler, daha fazla psikolojik sorunlar yaşamıştır Sonuç: Patlama travmasına maruz kalan işçilerde psikolojik fonksiyonlar daha kötü değildir. Patlama sonrası geçen 11 senelik zaman, işçilere verilen psikolojik, fiziksel ve ekonomik destek, işçilerdeki psikolojik travmayı azaltmış olabilir.
  • Küçük Resim
    Öğe
    Nutritional status of children with cerebral palsy in Turkey
    (Taylor & Francis Ltd, 2013) Tuzun, Emine Handan; Guven, Duygu Korkem; Eker, Levent; Elbasan, Bulent; Bulbul, Selda Fatma
    Purpose: The aim of this study was to assess the nutritional status, and provide information regarding anthropometric measurements of cerebral-palsied children living in the city of Ankara, Turkey. Method: A total of 447 children with cerebral palsy (CP) were participated in this cross-sectional study. Participants were assessed for functional motor impairment by the gross motor function classification system (GMFCS). Assesment of nutritional status was based on the triceps skinfold thickness (TSF), arm fat area (AFA) estimates derived from TSF and mid-upper arm circumference measurements. TSF and AFA Z-scores were computed using reference data. Results: Cerebral-palsied children had lower TSF and AFA Z-scores compared to reference data from healthy children. The prevalence of underweight and overweight among boys was 8.3 and 9.5%, respectively, whereas it was 19.0 and 0.5% for girls. Underweight was more prevalent in the low functioning children than in moderate functioning children. Conclusions: The findings of this study indicate that cerebral-palsied children face nutritional challenges. Underweight is more prevalent than overweight among cerebral-palsied children. To optimize the outcomes of rehabilitation and prevention efforts, an understanding of the heterogeneity of nutritional status among children with CP is required.