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    Genetic Screening Services Provided in Turkey
    (Wiley, 2013) Erdem, Yurdagul; Teksen, Fulya
    In Turkey, the rate of consanguineous marriage is quite high (22-24 %) and as a result, the incidence of autosomal recessive diseases and congenital anomalies is also very high and gives rise to a serious public health problem. In the last three decades, great effort has been made to avoid increases in the prevalence of these hereditary diseases. For this purpose, population-based premarital, prenatal, neonatal and adult genetic screening programs are performed in various centers such as Community Health Centers, Early Diagnosis of Cancer and Education Centers (KETEM), Prenatal and Neonatal Departments of Universities and State Hospitals and Thalessemia Screening Centers. Such centers are staffed by health professionals including physicians, family physicians, nurses, midwives, biologists and medical geneticists. Genetic counseling is also provided to patients attending these centers after screening tests are performed. Since there are no specialized training programs for genetic counselors, genetic counseling is generally provided by doctors or medical geneticists. The aim of this paper is to give an overview of the genetic screening services provided in Turkey, the prevalence of genetic diseases and the design of intensive educational programs for health professionals.
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    Patients' Experiences of Informed Consent and Preoperative Education
    (SAGE PUBLICATIONS INC, 2020) Akyuz, Elif; Erdem, Yurdagul
    The aim of this descriptive cross-sectional study was to determine adult surgery patients' experiences of informed consent and preoperative education. Research was conducted between September 2018 and February 2019. The sample consisted of 201 adult patients of a university hospital in Turkey. Data were collected using a 48-item questionnaire developed by the researchers based on literature. More than half of the participants (54.2%) were fully informed while 36.8% were partially informed about their surgery process and 61.2% were informed by physicians. Overall, 33.3% had unanswered questions about surgery, with questions relating mostly to the type of surgery (26.8%) and its effect on their body (25.4%). Participants were least informed about preoperative deep breathing and cough exercises (47.8%). More than half (58.4%) of participants expected healthcare professionals to avoid using medical terminology when informing them. Physicians and nurses perform invasive interventions on patients and, therefore, should be sensitive about informing patients.
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    Reliability and Validity Study of the Turkish Version of Child and Adolescent Social Support Scale for Healthy Behaviors
    (Elsevier Science Inc, 2018) Albayrak, Sevil; Cakir, Biriz; Kilinc, Fatma Nisanci; Vergili, Ozge; Erdem, Yurdagul
    Purpose: The purpose of this study is to investigate adaptation, validity, and reliability of the Turkish version of the Child and Adolescent Social Support Scale for Healthy Behaviors (CASSS-HB). Methods: The CASSS-HB was translated using translation and back-translation. This was a methodological study conducted with 860 students (11-14 years old). Content and construct validity were assessed to test the validity of the CASSS-HB. Exploratory and confirmatory factor analysis of the scale was performed and the reliability of the scale over time (the test-retest method) was examined. Results: Psychometric analyses of the Turkish version of the CASSS-HB indicate high reliability and good content and construct validity. Conclusions: It can be seen that the items comprising the scale appear to be acceptably capable of measuring the variable of social support in terms of healthy behavior in children and adolescents. Healthcare professionals can thus use the scale for determining the degree of social support students of the ages 11-14 receive in terms of developing healthy behavior. (C) 2018 Korean Society of Nursing Science, Published by Elsevier Korea LLC.