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  • Küçük Resim
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    Exploring Communication Difficulties in Pediatric Hematology: Oncology Nurses
    (Asian Pacific Organization Cancer Prevention, 2013) Citak, Ebru Akgun; Toruner, Ebru Kilicarslan; Gunes, Nebahat Bora
    Background: Communication plays an important role for the well being of patients, families and also health care professionals in cancer care. Conversely, ineffective communication may cause depression, increased anxiety, hopelessness and decreased of quality life for patients, families and also nurses. Objective: This study aimed to explore communication difficulties of pediatric hematology/oncology nurses with patients and their families, as well as their suggestions about communication difficulties. Materials and Methods: It was conducted in a pediatric hematology/oncology hospital in Ankara, Turkey. Qualitative data were collected by focus groups, with 21 pediatric hematology/oncology nursing staff from three groups. Content analysis was used for data analysis. Results: Findings were grouped in three main categories. The first category concerned communication difficulties, assessing problems in responding to questions, ineffective communication and conflicts with the patient's families. The second was about the effects of communication difficulties on nurses and the last main category involved suggestions for empowering nurses with communication difficulties, the theme being related to institutional issues. Conclusions: Nurses experience communication difficulties with children and their families during long hospital stays. Communication difficulties particularly increase during crisis periods, like at the time of first diagnosis, relapse, the terminal stage or on days with special meaning such as holidays. The results obtained indicate that pediatric nurses and the child/family need to be supported, especially during crisis periods. Feeling of empowerment in communication will improve the quality of care by reducing the feelings of exhaustion and incompetence in nurses.
  • Küçük Resim
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    Intervention Protocol: Technology-Based Psychosocial Motivation for Children with Cancer and Their Parents: A Randomized Trial
    (Wolters Kluwer Medknow Publications, 2020) Sengul, Zeynep Kisecik; Toruner, Ebru Kilicarslan
    Objective: This experimental randomized controlled trial will be to examine the impact of a technology-based psychosocial motivation program on children and families who are being followed up on a diagnosis of cancer. Methods: The research is based on the "Transactional Model of Stress and Coping." This study will be conducted on children with leukemia, aged 9-18 years, and their parents, who will be followed in the consolidation treatment phase in the hematology wards and outpatient clinic of a university hospital. Data collection will consist of the children's and parents' descriptive characteristic form, the Spielberger State Anxiety Inventory for Parents, the State-Trait Anxiety Inventory for Children, the Pediatric Cancer Coping Scale, the Pediatric Quality of Life Inventory, and process evaluation forms. A 10-week program will be implemented for the children in the intervention group through web-based training, coaching interviews and counseling via video mobile calls, mobile messages and children's stories, progressive muscle relaxation and breathing exercises, and imagination interventions. During the same period, parents will also receive web-based training, coaching sessions, counseling, mobile messages, and progressive muscle relaxation exercises. Results: It is thought that after the intervention the stress level of the child and the family will decrease, the coping skills of the children will improve, and their quality of life will increase. Conclusions: It is thought that the treatment process can be affected positively by providing psychosocial support to children and their families who receive cancer treatment.
  • [ X ]
    Öğe
    Reliability and validity of the Turkish version of the Paediatric Cancer Coping Scale (PCCS)
    (Wiley, 2022) Sengul, Zeynep Kisecik; Toruner, Ebru Kilicarslan; Ozbek, Namik Yasar
    Background To determine the validity and reliability of the Turkish version of the Paediatric Cancer Coping Scale, a scaling tool that has three subscales (cognitive coping, problem-oriented coping and defensive coping) and was developed to examine the coping strategies of children with a cancer diagnosis. Design This psychometric evaluation study focused on validity and reliability assessment of a scale between November 2018 and May 2019. Methods Study sample consisted of 165 children with cancer aged 7- to 18-years followed up in the outpatient clinics of a children's hospital. The retest sample consisted of 85 children. Data were collected using a Descriptive Characteristics Form and the Turkish version of the Paediatric Cancer Coping Scale. Cronbach's alpha coefficient and total item correlation were calculated for internal consistency reliability. Exploratory and confirmatory factor analyses were conducted to determine construct validity. Results The total Cronbach's alpha (alpha) of the Turkish version of the Paediatric Cancer Coping Scale was 0.77. According to exploratory factor analysis, the Paediatric Cancer Coping Scale has three subscales (cognitive coping, problem-oriented coping and defensive coping). Our results showed a positive and statistically significant correlation between the scale total, cognitive coping and problem-oriented coping scores (p < 0.01). Conclusion The Turkish version of the Paediatric Cancer Coping Scale is a valid and reliable measurement tool that can be used to assess coping styles in paediatric cancer patients. Summary statement What is already known about this topic? There is no measurement tool in Turkey to examine coping skills of children with a cancer diagnosis. The number of children diagnosed with cancer is increasing day by day. The children who use coping methods effectively during the disease may be better adapted to treatment. What this paper adds? This study is used to define coping skills of children diagnosed with cancer. Defining the level of children's coping with cancer can enable the child to be guided to receive psychosocial support. The implications of this paper Once the coping skills/levels of children can be measured, those who need help/assistance can be helped. This study will help nurses to identify coping levels of children with a cancer diagnosis. Nurses will be able to evaluate the psychosocial status of children using an objective measurement tool and make a care plan.