Assessment of parents' knowledge regarding phenylketonuria and its affecting factors: a cross-sectional study

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dc.contributor.authorOzturk, Fatma Unesi
dc.contributor.authorBulbul, Selda Fatma
dc.contributor.authorAlpcan, Aysegul
dc.date.accessioned2025-01-21T16:36:01Z
dc.date.available2025-01-21T16:36:01Z
dc.date.issued2022
dc.departmentKırıkkale Üniversitesi
dc.description.abstractIntroduction: the management of phenylketonuria (PKU) is complex. Practical skills and knowledge of individuals taking care of PKU patients are important for treatment compliance. This study investigated parents' knowledge about PKU and its affecting factors. The study group consisted of 62 parents of PKU patients. Methods: data were collected using a ready-made questionnaire on sociodemographic characteristics, PKU and dietary treatment. Total knowledge score (KS) was calculated by giving 5 points for each correct answer. Results: the study included 34 mothers and 28 fathers; 90.3% of patients were diagnosed during the newborn screening program, 6.5% between ages 1 and 2, and 3.2% at age 6 or after. Among all, 38.7% presented to their follow-up appointments with their mothers, 61.3% with both their parents and none with their father alone. Mothers answered all questions more accurately than fathers. Mothers' and fathers' mean KSs were 73.97 +/- 12.72 and 53.04 +/- 22.25, respectively. The highest KS was obtained among parents whose children were 13 years of age or older. Conclusion: the presence of another family member, parents' education level, working status and professional qualifications, previous training on PKU and family's economic status were the affecting factors. Creating a PKU dietary plan requires knowledge and diligence. Patients and their parents should be periodically informed about the disease and dietary treatment in order to increase their level of knowledge.
dc.identifier.doi10.11604/pamj.2022.41.308.25936
dc.identifier.issn1937-8688
dc.identifier.pmid35855041
dc.identifier.scopus2-s2.0-85132362810
dc.identifier.scopusqualityQ2
dc.identifier.urihttps://doi.org/10.11604/pamj.2022.41.308.25936
dc.identifier.urihttps://hdl.handle.net/20.500.12587/24236
dc.identifier.volume41
dc.identifier.wosWOS:000826347700009
dc.identifier.wosqualityN/A
dc.indekslendigikaynakWeb of Science
dc.indekslendigikaynakScopus
dc.indekslendigikaynakPubMed
dc.language.isoen
dc.publisherAfrican Field Epidemiology Network-Afenet
dc.relation.ispartofPan African Medical Journal
dc.relation.publicationcategoryMakale - Uluslararası Hakemli Dergi - Kurum Öğretim Elemanı
dc.rightsinfo:eu-repo/semantics/closedAccess
dc.snmzKA_20241229
dc.subjectPhenylketonuria; parents; information level; disease outcome; diet
dc.titleAssessment of parents' knowledge regarding phenylketonuria and its affecting factors: a cross-sectional study
dc.typeArticle

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